Parental information from the DSKN – DEUTSCHE STIFTUNG KRANKE NEUGEBORENThe DEUTSCHE STIFTUNG KRANKE NEUGEBORENE supports projects that ensure long-term care for sick newborns. Structures should be established to help prevent or. early detection of medical, psychosocial and developmental neurological late effects after premature birth or illness in infancy serve.
Parents are usually able to intuitively grasp their child's needs within a few days after birth and respond to them adequately. A premature birth or the illness of the child and the associated necessity of its medical treatment impede the development of this intuitive competence. Training and instruction of parents during the inpatient stay of their child is helpful here. Sometimes, however, there is a desire to look back at what has been learned and shown in follow-up. Here the DSKN – videos help.
What is the German Foundation for Sick Newborns??
Table of Contents
Pregnancy usually lasts 40 weeks. But what happens when my child is born early? How it is supplied? What can we as parents do for our child? Can we be with our child, touch them? These questions and more are addressed in the DSKN video#firstcare Answers.
We would like to thank the Auerbach Foundation and Mandy Wunder together with the gym Olympia Coswig for their support in creating the DSKN-VIDEO#First aid.
How do I interact with my child? What signals does it send me? How can I support my child?
We would like to thank the Auerbach Foundation for their support in the preparation of the DSKN-ExplainIt#Interaction.
What to expect in the neonatal intensive care unit?
We would like to thank the Auerbach Foundation for their support in creating the DSKN-ExplainIt#ITS.
DSKN video#Intensive Care Unit
DSKN video#experience report
With the DSKN-VIDEO#Breastfeeding, the special features of feeding premature infants with breast milk are addressed, mothers are given practical tips, and the chance is increased that premature infants can also be discharged from the hospital breastfed.
We thank Medela Medizintechnik GmbH& Co. Handels KG for the support in the production of the DSKN-VIDEO#Breastfeeding.
DSKN video#Finally home
DSKN video#Diaphragmatic Hernia
What to do if my child gets into a life-threatening situation? In DSKN video#ErsteHilfe the individual measures for first aid are explained step by step.
We thank the Drager Foundation for their support in creating the DSKN educational videos.
What is a diaphragmatic hernia?? What does it mean for my child? What are the options?
We would like to thank the Auerbach Foundation for their support in the creation of the DSKN-VIDEO#Diaphragmatic Hernia.
DSKN video#Parents are important
Diagnosis of diaphragmatic hernia. For most parents, this is initially a completely unknown term. It triggers fear. But with proper and timely recognition, children have a good chance of survival. A family tells how this worked for you.
We would like to thank the Auerbach Foundation for their support in the creation of the DSKN-VIDEO#Parents are Important.
Book series – Download
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE supports projects that enable institutions to share their experiences and learn from each other in a sustainable way.
Making knowledge available – Neonatology in detail
All those involved in the care of premature or sick newborns have the goal of providing care in accordance with current scientific knowledge. Prerequisites for this are, in addition to extensive, clinically oriented research, systematic studies on clearly defined questions.
You are welcome to order the books from the series Neoanatology in detail can be obtained from the DEUTSCHE STIFTUNG KRANKE NEUGEBORENE, which the foundation provides free of charge. The shipping and handling fees per copy are € 3.92 and consist of € 2.75 for shipping and € 0.42 transaction and € 0.75 handling fees. You can also download the books as PDF.
You are welcome to support the production of additional books with an additional donation.
The focus is on hypothermia treatment; because several studies have shown that lowering body temperature can reduce potential neurological sequelae in infants who suffered oxygen deprivation at birth. Unfortunately the book "Perinatal Ashyxia. Hyperthermia treatment" currently out of print. If you would like to support the reprint, you have the opportunity to donate here.
Volume 1 Perinatal Asphyxia and Hypothermia Treatment PDF
Volume 2 First aid in the delivery room as PDF
Volume 3 Psychological-social medical care for parents of premature infants as PDF
Structured discharge preparation and outpatient follow-up of preterm infants is important for the future development of these children. The neonatology center, pediatricians and, last but not least, the parents should work together like a well-rehearsed team to achieve the best for the prematurely born child. This book can help them. Based on the potential long-term problems of premature infants, it provides recommendations for effective screening and preventive measures, describes the necessary follow-up examinations, and explains the goals and requirements for structured outpatient follow-up and continuing care for infants born prematurely. Unfortunately, the book "Discharge Preparation. Outpatient care of premature infants" currently out of print. If you would like to support the reprint, you have the opportunity to donate here.
Volume 4 Discharge preparation and outpatient care of preterm infants PDF
Volume 5 Bronchopulmonary Dysplasia as PDF
Well cared for even after hospital
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE (German Foundation for Sick Newborns) supports projects that ensure long-term care for sick newborns. Structures are to be set up that help to avoid or reduce the risk of hospitalization. Serve early detection of late medical, psychosocial, and developmental neurological sequelae after premature birth or illness in infancy.
Teaching videos – help also for the time at home
Parents are usually able to intuit and respond adequately to their child's needs within a few days of birth. A too early birth or the illness of the child and the associated necessity of its medical treatment complicate the development of this intuitive competence. Training and teaching parents during their child's inpatient stay is helpful here, though many questions or uncertainties arise after the child has been discharged home and no direct contact is immediately available.
The development of appropriate audio-visual teaching material, which specifically addresses various aspects of parental competence and offers descriptive support, may become necessary in this situation, but is not yet available – specifically tailored to the needs of prematurely and ill born children and their parents.
The DSKN – DEUTSCHE STIFTUNG KRANKE NEUGEBORENE supports the creation of video-based learning and visual material, which is available to parents not only during inpatient therapy, but also at home.
DSKN video#Finally home
Now the time has finally come to enjoy everyday life at home, which, as with all newborns, will also be stressful at first. The way home is exciting for many parents, sometimes even a bit scary. With discharge from inpatient treatment to the home environment. Into continuing outpatient care challenges change.
What to do if my child gets into a life-threatening situation? In the DSKN video#FirstAid the individual measures for first aid are explained step by step.
Safe baby sleep
Sleep well, baby! is an action of the Hamburg Alliance Against Sudden Infant Death Syndrome. You can learn about the requirements for safe baby sleep at the Sleep Well, Baby website.
– PDF Caption Also well cared for after hospital – PDF Link /images/pdf/After_the_hospital.pdf
Investing in the future
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE supports projects that aim to introduce innovative interventions into clinical practice for which there are no funders from industry. A prerequisite for this is clarification of the question of how financing – after a start-up phase – is to be secured in the future.
The extrauterine fetus – a special situation requires a special therapy
The prematurely born child must spend the first few weeks of life growing up in an environment that is very different from the situation in the womb – in which the fetus would be developing at this time. The development of the individual organs and organ systems in the womb is adapted to this special environment and is regulated by cells of different origin. If the child is born too early, the immaturity of the organ systems and the environmental conditions that are not optimal for this stage of development lead to changes – also and especially of the body's own stem cells – which can partly explain long-term chronic diseases.
The development of innovative treatment methods requires a better understanding of the specifics of these very immature preterm infants in interaction with environmental conditions. For conventional pharmaceutical companies, the very small group of extremely immature premature infants, both in terms of numbers and weight, represents a challenge that only a few are willing to take on. Relatively high investment costs for the development and approval of drugs for this patient group make a return on investment seem improbable. Thus, promising therapeutics often do not make the leap from the laboratory to the neonatology ICU.
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE would like to support projects that focus on the further development of – in particular cellular – therapeutic approaches that take into account the special characteristics of the extra-uterine fetus. Projects should be at a very advanced stage of development. Enabling the translation of experimental data into clinical practice.
– PDF Caption Investing in the future – PDF Link /images/pdf/In_investing_in_the_future.read pdf
Learning from the best
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE supports projects that enable institutions to share their experiences and learn from each other in the long term.
Making knowledge available – neonatology in detail
All those involved in the care of premature or sick newborns have the goal of providing care in accordance with current scientific knowledge. The prerequisites for this are not only extensive, clinically oriented research but also systematic studies on clearly defined questions.
However, there are strict limits to the sharing and application of this knowledge in daily practice. Classic textbooks provide an excellent overview of and introduction to the subject; however, they cannot always represent the most current state of the art on every topic; moreover, they are of little use to parents or. Non-medical professional groups often find it difficult to understand. Review articles in journals summarize the current state of science well, but often have only a very narrow thematic focus. A generally comprehensible summary of the latest research results on a clinical picture – accompanied by a critical evaluation. Conclusions for clinical practice – often missing; the narrowly circumscribed readership makes a corresponding publication of little interest for reasons of publishing economics.
With Neonatology in detail the DEUTSCHE STIFTUNG KRANKE NEUGEBORENE (German Foundation for Sick Newborns) supports a project whose goal is to work on neonatologically relevant topics, to summarize the relevant current state of knowledge, to critically evaluate it, and to draw conclusions for clinical practice.
Further topics in preparation
– Neonatology for Obstetricians – Obstetrics for Neonatologists
– Practical aspects of psychological-social medical care of premature infants
You are welcome to order the books from the series Neoanatology in detail can be obtained from the DEUTSCHE STIFTUNG KRANKE NEUGEBORENE, which the foundation makes available to you free of charge. The shipping and handling charges per copy are € 3.92 and consist of € 2.75 for shipping and € 0.42 transaction and € 0.75 handling charges.
Volume 1 Perinatal Asphyxia and Hypothermia Treatment
This first volume discusses perinatal asphyxia, which accounts for about one-quarter of all neonatal deaths worldwide, and presents therapeutic interventions to minimize asphyctic damage.
The focus is on hypothermia treatment; because several studies have shown that in infants who suffered oxygen deprivation at birth, lowering the body temperature can reduce possible neurological sequelae. Unfortunately, the book "Perinatal Asphyxia. Hyperthermia Treatment" currently out of print. We are currently revising the book. If you would like to support the reprint, you have the possibility to donate here.
Volume 2 Initial care in the delivery room
The second volume of the series Neonatology in detail deals with primary care in the delivery room. Almost 60 years after Virginia Apgar's groundbreaking publication in 1952 ("Apgar Score"), it is time to examine what validity Apgar's approach still has today. Meanwhile, not only has a new specialty – neonatology – emerged. Has dramatically increased neonatal survival rates. Since then, the initial care of newborns has also been critically discussed in a large number of publications. The aim is to provide the reader with arguments that allow an individual practical approach after weighing up the advantages and disadvantages.
Unfortunately, the book "Initial care in the delivery room" currently out of print. If you would like to support the reprint, you have the opportunity to donate here.
Volume 3 Psychological-social medical care for parents of premature infants
The third volume of the series Neonatology in detail Describes the requirements for a new area of care for families of premature and sick newborn infants, which improves the quality of care and includes parent counseling, parent education, and discharge management. It shows how psychological-social medical measures can – better integrate the parents into the medical processes of the ward, – reduce the existing fears and stress of the parents, – strengthen the early parent-child bond and thus – promote the cognitive and psychological development of the prematurely born child in particular.
Volume 4 Discharge preparation and outpatient care of preterm infants
Structured discharge preparation and outpatient follow-up of preterm infants is important for the future development of these children. The neonatology center, pediatricians and, last but not least, the parents should work together like a well-rehearsed team to achieve the best for the prematurely born child. This book can help them to do so. Based on the potential long-term problems of premature infants, it provides recommendations for effective screening and prevention measures, describes the necessary follow-up examinations, and explains the goals and requirements for structured outpatient follow-up and continuing care of infants born prematurely.
Volume 5 Bronchopulmonary dysplasia
– PDF Caption Learn from the best – PDF Link /images/pdf/Learn_from_the_best.pdf
All in one region
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE supports projects that aim to optimize the long-term care of premature and sick newborns in a region by developing innovative care concepts with the involvement of all stakeholders, testing them for their effectiveness and then introducing them into clinical routine.
Development of a perinatal region
Premature and sick newborns require holistic support in their health development, which must be ensured by the various medical disciplines, across the individual sectors of the health care system and beyond that by regional community care services. Coordination with each other appears to be imperative. Although there are many similarities, each area also has specific characteristics that require clear interface management.
Previous regulations of the legislator define clear prerequisites for the individual sectors, but hardly take into account the special care needs of premature and sick newborns, which extend far beyond the individual sectors. The development of a concept for the care of premature and sick newborns in a region thus appears to be urgently needed, but this presupposes data on the wishes and ideas of the individual parties involved and a clear definition of criteria for evaluation.
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE is committed to generating the data basis for political decisions on the development of a perinatal region and to scientifically evaluating the effects of corresponding structural decisions on the care landscape and the quality of care for premature and sick newborns.
– PDF Caption All in one region – PDF Link /images/pdf/All_in_one_region.pdf
Designing requires a vision of the future
The DEUTSCHE STIFTUNG KRANKE NEUGEBORENE supports projects that provide space for social discourse and thus lay the foundation for the future today.
Status report of the DSKN – DEUTSCHE STIFTUNG KRANKE NEUGEBORENE (German foundation for sick newborns)
The DSKN status report serves as a basis of information on important focal points of the care of sick newborns in Germany, which require increased political and social awareness, and pursues two main goals. The status report summarizes the existing data in a generally understandable way and makes it available to the interested public. A comparison of the required condition with the status quo enables the identification of task areas of social action. The status report tries to translate the existing gap into practical work packages. The content of the status report is based on the goals of the DSKN – DEUTSCHE STIFTUNG KRANKE NEUGEBORENE (German Foundation for Infants with Illnesses), and individual focal points are dealt with in detail at regular intervals.
Strong parents – strong children: How parent-friendly are newborn facilities in Germany??
Approximately 20% of all newborns develop health problems immediately after birth that require inpatient treatment. The WHO/UNICEF initiative "Baby-Friendly" is committed to implementing the B.E.St.® criteria. The dissemination of the "Baby-Friendly" quality seal in Germany a.E.St.® criteria and the dissemination of the "Baby-Friendly" quality seal in Germany. B.E.St.® stands for "bonding," "development" and "breastfeeding. The criteria are based on the international guidelines of the World Health Organization (WHO). The United Nations Children's Fund UNICEF. They are the content basis of the certification of an obstetrics and pediatrics facility as "Baby Friendly". Parents are the most important caregivers for their children; good parent-child interaction is an important prerequisite for undisturbed child development. The establishment of parent-child interaction can be made more difficult by the newborn's illness and the associated need for inpatient care; various structural conditions can also support parents in this situation. It is unclear whether the criteria of "baby-friendliness" also take into account the interests of parents.
All in one region: How good is the care for sick newborns in the region??
Optimal medical care for sick newborns requires close cooperation between hospitals, practicing physicians, midwives, therapists and all other treatment facilities. To this end, policymakers have placed the concept of "transsectoral care" at the center of the evolving care landscape. Devotes special attention to the interfaces between different care facilities. For pediatrics, against the background of demographic change, the frequently observed occupational and labor migration during the time of family formation, and the "aging of entire rural areas," a glaring shortage of care seems to exist. The question arises as to whether the pediatric care reality can still meet the regional care needs at all.
Investing in the future: What health-related knowledge do parents have?
Newborns represent the future of a society. They are, even completely independent of a disease, dependent on help from their parents immediately after birth; developmental science therefore calls them "physiological preterm infants", who are dependent on the emotional and social refuge of their family. Health literacy is the ability to find, understand, evaluate, and apply health information to make appropriate health decisions in everyday life. If this health knowledge used to be passed down from grandparents to parents to children, and the family doctor sometimes knew "his family" for generations, today this encounters enormous challenges: Health knowledge – including medical knowledge – has reached a level that can hardly be mastered in disciplinary terms; the classic family with regional roots is the exception rather than the rule; the Internet as a medium of modern health education often presents unfiltered and interest-oriented commented information. The European Health Literacy Survey shows that nearly 80% of adults have inadequate knowledge in the area of health literacy. Concrete data regarding health literacy in the management of the (sick) newborn are currently not available, but are a prerequisite for the care and management of a (not only) sick newborn.